Happy Birthday

Happy birthday to the Man Of The House, we had a great day, pity it was raining so picnic plans had to be abandoned. Ice skating, was great and dinner out was wonderful. Birthdays have become so much more special since we found out El has Cf. Celebrate life any chance you get! I think I will try and get out on my rollerblades today!

65 Roses Day

Today is 65Roses day in Australia. Visit http://www.cysticfibrosis.org.au/qld/ to find out more about Cystic Fibrosis or to make a donation. They offer wonderful support to all of our family as we fight the battle against this disease.

Just Another Manic Wednesday!

I like Wednesday because we don't have time for school work, so does J!! I also don't like Wednesday because it is one of the few days we have to rush out the door. We have to go to the hospital for Em's speech ( I actually think it is her last appointment today), I try to go early and have a walk first, to wear off some energy, before sitting still for an hour. Then it is back in the car for the mad dash to tennis. At least it is on the same day. I prefer to have one crazy day then lots of little things all week!

The speech is so good for Em and she really enjoys it! What 4 year old doesn't love being the centre of attention! She is working on "sh" at the moment. Never before did I realise how much work it can take to make a sound, (especially with part of your mouth missing). The speechies are wonderful with her, and I hope she continues to enjoy her speech appointments as she gets older.

You Can't Leave

I found out today that one of El's CF nurses is leaving. I am devastated. First her dietician changed, then her OT changed and now one of her nurses, who is our first contact for everything CF. So at our next clinic in two weeks we will meet our new nurse. I dislike meeting new people, and nurses are such a big part of our CF life. Last year when we started our CF journey I thought the people we met at clinic would be there forever, which when I think back doesn't make sense, because even though I know they care and do a great job. It is still just a job for them.

Proud Of My Kids

Yesterday I was sick in bed, and in the evening Daddy took El with him to get some chips for dinner. Leaving J and Em here. They decided to tidy up, get plates and cups out for dinner and vacuum the floor, they even got El's enzymes ready. They did a fantastic job for a six and four year old. It made me feel so proud that they would do something like that all on thier own.

Hello

Hello. I am a mother with three wonderful children, who will be known as J, Em, El. I homeschool (Yes I am officially mad). Em was born with a cleft lip and palate, and El was diagnosed with Cystic Fibrosis at 2 weeks old. This blog is where I can chat about whatever I feel like.