Hospital in the home was going great until her Miss El's arm became swollen red and sore. However, after spending the day in the hospital we decided that the actual PICC line was ok. SO home we came. It seems like her medicine is going through ok. Hopefully the line will be good until she is finished this course of IV's.

Today we are off to clinic to get the results of her annual review and make sure her cough is getting better, which it seems to be. Thankfully. SO the big kids are off to a friends and El and I are off to clinic. Please everything go well, Please.

well it has been a crazy couple of weeks.

cf annual review
El lost weight about 300g since November. Not the best start to clinic. They decided to change her antibiotics to two different ones. And booked her in to see physio on Friday. Took an x-ray and talked to all the different team members nothing ground breaking to be sure.

Physio appointment
So I took her and the other kids in on Friday to physio planning to have her apt. and then planned to meet some friends at the cultural centre which had just reopened after the flood. But the physio said she wanted to speak to the nurse who wanted us to see the doctore who wanted us to be admitted because she had a chest infection! I had no idea she was so sick!! I mean she wasn't 100% but hasn't been for ages. We were admitted Friday afternoon and were in till Wednesday night.

On Tuesday she had a PICC line put in, (after going through a cannula every day). They also took a sample from deeper down then with a cough swab as her cough swabs have all been negative. I guess I will find out on Monday (when we go back to clinic) if she has grown anything. I was quite nervous for the surgery but she recovered very quickly and the PICC is much better, then the little peripheral lines. Now we are home and a nurse is coming out every day to change her antibiotics and check the line. The physio comes twice a day. It is great to be home. The responsibility is quite weighty for me, but the nurse and physio were great yesterday.

The little baxter pump is amazing, its like a baby's bottle with a balloon inside that drips over 24 hours. I would love to know exactly how it works! Also to thank whoever designed it!

J and Em have been at Grandma's since the weekend, so I am missing them but also enjoying the break from everything. I had a crisis last night because J asked if El would be in hospital for the whole two weeks because he was having a great time and didn't want to come home early. I am glad he is having a fabulous time (yesterday they went swimming and helped make a bonfire, I can't really compete with that!), but part of me wishes they wanted to come home! I am not sure when we will get them home I am just seeing how it all goes for a few days first.

It's tomorrow!!! Her annual review is tomorrow. Now I'm panicking. I really don't like going there. I know I don't have a choice, but I still don't want to go! Miss El coughed so badly last night that I thought she was going to be sick. Thankfully she wasn't. Maybe this cough has to get worse before it gets better?

I'm not coping too well today, but in a little over 24hours it will all be over. Until next year.

Countdown to Annual Review 3 days!!
Yes I am starting to panic now. I keep going over everything they might say and ask and trying to figure it all out. Then I go off on rediculous tangents, which don't even make sense! So I am trying not to think about it, which isn't working at all.

I am really concerned about her cough, which doesn't seem to want to go away. physio doesn't really seem to help, and the antibiotics for her ear (Ialex) certainly isn't doing anything for her cough. Not that I thought it would, it was just a secret (not-so-secret now) hope, that it would magically get rid of her cough at the same time it helped with her ear infection.

I had an excellent time at Wicked last night! It is a fantastic show and now I just want to go again! Not going to happen but it was great!!!

Did I mention its 3 day until her annual review?

passed inspection yeah
going to see Wicked tomorrow double yeah

Feeling exhausted and hope I am not getting what the girls have had because that could potentially spoil the above. Its probably just from all the cleaning and panicking about the inspection that I am tired (she types optimistically).

El coughed up her breakfast this morning and has a lovely green snotty nose and an awful cough as well which is just lovely! Em seems to be feeling a bit better today after her 3 hour nap yesterday.

Tennis was cancelled because of the rain and I accidently left my toddler locked in the car in the garage for 10 minutes as well. I feel awful, even though she was fine. It happened because I did things differently then I usually do. It shows how easily accidents can happen, thankfully it was a cool day. So I am grateful that yesterday is finished and that today is a new day with no mistakes in it yet (thanks Anne with an E for that quote)!

Busy Month

Yes it has been a busy month and I haven't felt much like writing. So for a quick update.
The weather is still crazy in Aus, floods, cyclones and bushfires! What next? I guess we will find out. Ourselves we have been lucky. Nothing worse then a huge branch falling off our gum tree, and no icecream at Macdonalds when we took the kids one day. So we can't complain really.

Most of the kids activities have started up again now. With J doing tennis, swimming, and guitar, and next month will do Art and Spanish with a home school group! We have started school work and his reading has improved so much, he still has battles with writing getting letters around the wrong way, but its not as bad as it once was.

Em is growing up way too fast and is doing dance and swimming at the moment, then will start drama and sport with the Home School group next month. Her reading is coming along very quickly, and I am thinking of ways to expand her, rather then let her get too far ahead of her age. She had a trip to oral health in January and he is very pleased with everything. Em was disappointed that she didn't get a new toothbrush like last time, so I bought her one at the shops after. It will be a whole year before we go back and I am a little concerned that they didn't give her teeth a good clean. She is 5 now and I thought they would start doing that. SO now I am wondering if I need to get that done at our dentist or wait until she goes back and see what they say then?

Miss El turned 2 on the weekend, which marks a lot of things. 2 years with CF for our whole family. 2 years of physio, meds, and panic at any cough. 2 years of joy watching her grow and learn! Its been a massive 2 years. It also marks her 2nd annual review on Monday (yuck), which I am not looking forward to.

She still has a cough, which has become worse since Friday when she seemed to get a cold. I took her to the GP yesterday because she was off her food, tired and had a temp. Her chest was clear but it turns out she has an ear infection. Poor kid, really nice birthday present! It doesn't explain why her cough is so horrible and has lasted so long. She had a cough swab done 2 weeks ago, but they didn't call to say she had grown anything. Maybe they will have some answers on Monday? I doubt it, and she probably won't cough while we are there! I am getting sick of the cough though, just not knowing what it is is driving me crazy!

We have a house inspection today, so have spent yesterday and this morning cleaning and tidying. Hopefully we will pass as I'm not in the mood for having someone tell me my house is disgusting!

ITs raining again! Like we need more rain!!! Send it to Perth!