well it has been a crazy couple of weeks.

cf annual review
El lost weight about 300g since November. Not the best start to clinic. They decided to change her antibiotics to two different ones. And booked her in to see physio on Friday. Took an x-ray and talked to all the different team members nothing ground breaking to be sure.

Physio appointment
So I took her and the other kids in on Friday to physio planning to have her apt. and then planned to meet some friends at the cultural centre which had just reopened after the flood. But the physio said she wanted to speak to the nurse who wanted us to see the doctore who wanted us to be admitted because she had a chest infection! I had no idea she was so sick!! I mean she wasn't 100% but hasn't been for ages. We were admitted Friday afternoon and were in till Wednesday night.

On Tuesday she had a PICC line put in, (after going through a cannula every day). They also took a sample from deeper down then with a cough swab as her cough swabs have all been negative. I guess I will find out on Monday (when we go back to clinic) if she has grown anything. I was quite nervous for the surgery but she recovered very quickly and the PICC is much better, then the little peripheral lines. Now we are home and a nurse is coming out every day to change her antibiotics and check the line. The physio comes twice a day. It is great to be home. The responsibility is quite weighty for me, but the nurse and physio were great yesterday.

The little baxter pump is amazing, its like a baby's bottle with a balloon inside that drips over 24 hours. I would love to know exactly how it works! Also to thank whoever designed it!

J and Em have been at Grandma's since the weekend, so I am missing them but also enjoying the break from everything. I had a crisis last night because J asked if El would be in hospital for the whole two weeks because he was having a great time and didn't want to come home early. I am glad he is having a fabulous time (yesterday they went swimming and helped make a bonfire, I can't really compete with that!), but part of me wishes they wanted to come home! I am not sure when we will get them home I am just seeing how it all goes for a few days first.