Friday, December 9, 2011

cystic fibrosis- update

El had a tune-up in the middle of October, even though she only cultured staph. She had trouble getting a picc line, so had a central line in her neck, which actually was less traumatic for getting hooked up to her IV. We came home for the second week of treatment which was great! Removal of the central line was horrible (so many stitches).

Since the admission her cough has cleared up and she has put on lots of weight!! Her meds and physio have also changed. So I'll put a list below.

1 abdek capsule/day
3mls iron/day
creon 10000 1/6g fat
6 puffs ventolin
4mls 4% hypertonic saline (nebulised)

The ventolin and hypertonic are done before her physio, which is mainly PEP and jumping on the trampoline. At the moment because she is so well we are only doing physio once a day.

Tuesday, December 6, 2011

Homeschooling

We are officially on Christmas Holidays!! J has been enrolled for 6 months now, and yesterday finished his last PACE for the year! Next year J and Em will both be enrolled, so I have to fill out some paperwork, pay some money and order next terms school books, and we will be all organised for next year.

As far as the holidays go we have no big plans just little ones. I also want to get cupboards etc. cleaned out before we start school again next year, and also look after this neglected blog a little better, but for now I am happy to be looking at the start of a few weeks with no schoolwork!