El had a tune-up in the middle of October, even though she only cultured staph. She had trouble getting a picc line, so had a central line in her neck, which actually was less traumatic for getting hooked up to her IV. We came home for the second week of treatment which was great! Removal of the central line was horrible (so many stitches).
Since the admission her cough has cleared up and she has put on lots of weight!! Her meds and physio have also changed. So I'll put a list below.
1 abdek capsule/day
3mls iron/day
creon 10000 1/6g fat
6 puffs ventolin
4mls 4% hypertonic saline (nebulised)
The ventolin and hypertonic are done before her physio, which is mainly PEP and jumping on the trampoline. At the moment because she is so well we are only doing physio once a day.
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