Thursday, September 30, 2010

Choose Your Battles

I hate to say that my lovely 1 year old who didn't complain about taking enzymes, doing treatments (except for her mask, which she has always hated), getting her nappy changed or anything much really has turned into a monster!

She hates taking enzymes, hates being still for anything, thinks she is one of the big kids who can do what they can do!

I don't remember how tired battling all day makes me. I think it is probably worse for El because of her CF, and the things that she has to do, every day, multiple times a day! It also makes my interactions with the older two more intense as I have already battled so much with El.

So my motto for the day is choose your battles very carefully, because there will be many battles, the war is very looooooooog.

Sunday, September 26, 2010

Please

Please take notice. Exercise is really important. Not just for your heart, your weight, your mind. But your mobility too. If you don't use it you lose it. It is easy to be complacent about the way you feel in your 20's but after witnessing a lady, in her 60's who hasn't kept her fitness up she is really restricted in her movements so I encourage everyone, to do something, anything. Everyday to keep your flexibility, range of movement and your ability to recover from injury. I know it is hard and I am hardly the poster person for doing something everyday, but I am trying. So that is my important information for the day.

Everyone, is doing well here. had a good time away. Enjoyed our week off and looking forward to our next one before back to school. El has a slight dry cough which I am trying to ignore and not stress about. I also realised that because her vitamin dosage has doubled we will run out before our next hospital visit so have to make a special trip in for her vitamins, grrr.

Next weekend we are going to a concert at QPAC which i'm really looking forward too!!

Tuesday, September 21, 2010

rain rain go away

Ok I know we need rain, in fact it wasn't that long ago that we were begging for rain! But why all week, the week we have no school work at the time of year when it is perfect for parks before it gets too hot? Also the week I am so far behind on washing, well actually I am generally always behind on the washing! So, scrap that!

Thankfully no phone calls yesterday, none at all in fact. I was a little lonely, with no adult conversation till 9pm when mr a got home from work! And then pretty much fell into bed and snored!

J is going to his friends birthday party today, so it will be strange without him around. May take the girls out, may not. Not really inspired to do anything. Hoping my Sis in law has her baby soon(was due yesterday). So I can officially be an auntie for the first time!!

Hoping the sun comes back next week.

Monday, September 20, 2010

No phone calls please

We have had a very quiet weekend. This week will make up for that I am sure! Although its the holidays there is still a lot to do. We are going away for part of the hols too.

Today is Monday 1 week after El's clinic appointment so if she grew any nasties today is the day we will find out. Seeing as how she is so well (apart from the fact that she just fell off a chair and bumped her nose) I told myself not to be worried, but last night that stopped working! I spent half the night working out how to organise the older two if she had to go into hospital, and the other half wondering how I would react to the phone call. A bit ridiculous I know. Especially considering we have never had a phone call before, she is not coughing at all, etc.. etc... etc!!

So my plans for distraction are shopping for a present for J's friend's birthday, and there my list runs out. I guess I'll have to work on my distraction list a little. Hopefully, tomorrow I will have nothing to blog about!

Friday, September 17, 2010

Holidays!

Holidays are upon us!!! No more school for two weeks!! And I have even planned next terms work!!

El's appointment went really well! Apart from the fact that she screamed everytime someone touched her!! She has gained weight, grown, chest is clear,tummy is fine. Increased her vitamin from 1/2 a capsule to a whole one! The biggest news is we don't have to do pats anymore, while she is well anyway! So just her PEP mask, which she contines to scream for, but that saves me 16 mins a day! We don't go back until November. November will see us at the hospital a few times, for cf clinic, Em's speeech assessment, and plastic surgery visit. So hopefully no awful phone calls next week!

Nothing much else going on, just normal stuff. And did I mention we are looking forward to our two weeks with no schoolwork?

Wednesday, September 8, 2010

Countdown

Well the countdown has begun. 4 days until clinic, then 7 days of dreading a phone call. I have to take the two big kids to clinic this time as well - because all my usual babysitters are out of action. Oh well, they will survive, but will I?

El has finished her antibiotics as of yesterday!!!! She is not coughing, but she is still not eating much. Mainly really small amounts of stuff, which makes it very hard to give the right number of enzymes. Hopefully she will be heavy enough.

School is going really well at the moment. We have pretty much finished for the term and are mainly practicing for our once a year concert/awards ceremony for the grandparents. That is assuming they can make it!!

Hopefully in the next two weeks I will be an Auntie for the first time!!!!! So excited. We are so buying him or her a noisy toy for christmas!!!

The weather here has been absolutely beautiful. Spring is my favourite time of year!! I love the cool nights and the warm days (it was 28 degrees yesterday). El went out in shorts!

Going shopping this morning which I don't like - but has to be done. No bread, no milk, no anything really. So it has to be done. Then tennis. So not sure if we will get school done today but here's hoping.