As I've said before we are extremely blessed in Australia to have the PBS. El also has a health care card which gives us further discounts off medicines.
Every prescription costs about $6, and there are quite a few over the course of a month. Another CF Mum has two children with CF and counted 37 prescription medicines that her children need!
So far all of EL's equipment for physio has been donated to us by Cystic Fibrosis Queensland. However, sometime in the future El will need a nebuliser at a cost of about $1500 and parts to go along with it!
Parking, each time we go to the hospital it costs about $20 to park, which is not too bad once every six weeks but sometimes we have had two or even three visits in a week. Some of these visits are Em's for cleft related appointments.
Admissions. No matter how you work it admissions seem to be expensive. I'm not really sure why, but we spend more money when we are inside.
Unfortunately as CF is a progressive disease the cost we will incur will probably rise in the future as she requires more medicine, more nebulisers and more hospital admissions. However, I would say that the biggest cost is not measured in dollars but in the effect that this disease has on our daily lives. Not just El but J and Em and A and I, and our extended family.
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