Sunday, May 8, 2011

31 Days of May the CF Way - Day 8 Non Compliance

El is on the whole a fairly good patient! However, we do have a few troubles! Occasionally El does not want to do her PEP physio, so we have to pin her down and shove the mask on her face! She is much better now then she used to be and only gets upset if she wants to be doing something else (like eating or wanting a toy!). It can be difficult because she can't eat for about an hour before physio as it tends to make her throw up.

A few months ago we had a very difficult time with her enzymes, she just refused to take them. At that time we were giving them once she had begun eating to see how much she would eat. We had to change our plan of attack. Now we give her enzymes first and she can not have food until she has taken them. Sometimes it takes a while (up to an hour) but she does take them!

At the moment she does not like the tast of her antibiotics so we have to pin her down and force feed her. Thankfully we have had experience with Em and have almost perfected the giving of oral medications to a non compliant child.

I hate having to force El to do things she doesn't want to and to take medicine that she doesn't like. Each day is a battle in some way or another and it is very tiring. However, it is a battle that has to be won. I think in some ways the age she is at (2) makes it fairly easy. I have grave fears that as she grows the battle we become harder rand longer. I know the day will come when she will be 100% responsible for herself. Thankfully I only have to get through one day at a time, one battle at a time!!!

LikeUnlike · · Share · Delete

No comments:

Post a Comment