El's Current Medications
1 capsule creon 5000 per 3g fat
1 capsule creon 10000 per 6g fat
1 capsule abdek vitamins per day
(all taken in apple puree with salt)
1ml iron every 2nd day
5mls antibiotic every six hours (1/2 an hour before or 2 hours after food) ( yes I do get up in the middle of the night fo that one).
Creon is taken with everything she eats, which means she takes about 10 per day. Creon helps her to absorb her food, as her pancreatic ducts are blocked. We also add salt to everything she eats and drinks. She also has a high fat diet as she requires more calories to achieve normal growth.
We have one section of our fridge entirely dedicated to her medicines and another one which is half hers!
This list can vary and gets more complicated if she gets sick and more medicines get added in. Back in February before her admission she was on two antibiotics, which both had different times to be given. Luckily I have a special book where I keep track of medicines, physio and any communication I have with nurses, GP's etc... Funnily enough A didn't even know this book existed until recently!!!
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